We all have our melancholy days and should allow ourselves the luxury of accepting them because tomorrow is a new day with new emotions. Thanks for sharing PWD Perspective. Again, thank you for sharing.
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I remembered names of people And the things that people said. I remembered going places And all the folk we met. Share this: Twitter Facebook Email. Like this: Like Loading Thank you — very kind of you. Leave a Reply Cancel reply Enter your comment here Fill in your details below or click an icon to log in:. Email required Address never made public. Name required. Post to Cancel. Post was not sent - check your email addresses!
Sorry, your blog cannot share posts by email.Debbie Affleck from Shipley Ward has written a powerful poem about dementia, in order to raise awareness. Oh where on earth am I and hey, who are you? The lights are so bright here and noises so loud. A familiar face I need in the crowd. I need the bathroom, but how do I say?
I get so frustrated, the words jumbled when they come out. Oh were on earth am I and hey, who are you? My life was so full, but in darkness I fell, Continue to tell me, I do have a call bell.
And if I forget, encourage me to drink and to feed, Check, use your skill to fulfil all my needs. Oh where on earth am I and hey who are you? Put familiar items around me so I know where to go. I never chose for my brain to be ill. Always so vibrant and such a strong will.The Funeral Poem - The truth, you see, is I’m still me,
Get to know me and help me so much to unwind. Trigger happy memory, continue to remind. For I am a human, no different to you. This awful disease, it just makes me so blue. So with a deep sense of compassion, even if I hit.
Remember my suffering and help to relieve it. You can be my familiar face, someone to hold. To keep me warm when I feel the cold. In a nursing vocation protect and to serve. For this, at the very least is what I deserve. D-C Affleck Shipley Ward.Talk to an expert about finding care : You also consent that we, or our partner providers, may reach out to you using a system that can auto-dial; however, you do not need to consent to this to use our service.
You'll typically hear from our team within minutes to explain our service and answer any questions you may have. You're not alone; join the fight against Alzheimer's disease. Our Blog. Pin It. All I know is that I need you To be with me at all cost.
Do not lose your patience with me, Do not scold or curse or cry. Tagged: Inspirational Quotes. When she's not getting her passport stamped, she's strategizing on how to connect with customers through content marketing and social media.
Chelsia is an advocate for reducing the stigma around Alzheimer's. Her passions include traveling, boating, marketing and leading a healthy life.
Request Info. Thank you! Free weekly email digest Stay-up-to-date and connected Get tips on how to find extra help How to cope with daily challenges. Close this popup. Skip to toolbar About WordPress. Sign Up for the Alzheimer's Newsletter Get the latest tips, news, and advice on aging and caregiving.This dementia poem originally appeared in a newsletter from Rochester Care Home. Help me find a way to exercise, read, and visit with friends. If I get dementia, and I become agitated, take the time to figure out what is bothering me.
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Annemarie who i see monthly and she is my voice of reason. Angela is someone i used to work with when i was a nurse on the intermediate care team. But there is no other person i trust more, in fact i would trust all i worked with to look after me. It took a lots of guts last year to get a walking stick that i use when i get wobbly. Pride got in the way a bit and i was worried how people might perceive me.
I know!!! But when you are young and used to being independent, its hard. But i bit the bullet and now i have a collapsible walking stick in my handbag, like a fashion icon!! The same regarding having equipment in my house. The thought upsets me greatly, and i having been shedding a few tears of late. I feel like i am 47 going on Which i know is ridiculous but its something i just have to get my head around, accept and know I am safe and still independent.
Once they are fixed and i have used them a few timeslike my stick i wont notice them. My stairs are very steep so when i am tired its hard work climbing them so i am having a secondary rail put on the wall so i will have two banisters. Which will probably be helpful. I am confiding these things to you so that if you need equipment, get it. How does the saying go Pride comes before a fall?
Dementia is a funny thing. I call my dementia the alien sometimes or the black entity other times. Most times I forget I have it, and then most times when I feel tired I know but ignore it. I know my body and mind. I have eaten apples every day for 20 years, loved them. Gala Apples are my favourite as they are crisp and juicy.
I buy them out of habit and then they go off. If I cut them into wedges and into smaller amounts then that is fine. I understand where she is coming from, when I read her poems. Her book is available on Amazon on 20th June. The same with carrots. Last time I did a chicken casserole, I felt sick preparing it. Never had that problem before. After I cooked it, I threw most of it away as the smell was still up my nose.
Colours are getting more and more confusing. If I am playing a game against the computer where you shoot the balloons down, colours change in front of my eyes and its frustrating to say the least.
Which me am I today?
I have just found out that I can change the colour of the keyboard on my phone. I have also taken the predictive text off the phone and I am less stressed now, which is strange cause I used to love the predictive text before the alien took over my brain. Words get muddly as it is without adding to it.
I get frustrated when the grammer police get on my case whether a word is spelt correctly, or the right or wrong word is used in the right category. Does it matter?I pretty much knew this was the last time she would do so.
Mum had dedicated decades of her life to being the best mother and grandma she could be. She could knit for England, and was sure nobody in the family would ever go cold, even knitting a 13 foot long Doctor Who scarf at one point. She also became a prolific cake baker and decorator, being commissioned to make many birthday and wedding cakes for family and friends, always artistic and creative.
At least, not if you ever wanted to find any of them again. She would often spend weekends at our house, to give Michael some respite from watching out for her. But the constant toll on his wellbeing became evident in when he had two minor heart attacks.
Following an operation it became impossible for Michael to maintain full care of her. We were both in full time jobs; I was away from home a lot. So sadly she moved into a care home.
Dementia Awareness: A Poem
She became agitated and aggressive to the point where she was briefly sectioned. But once the correct medication was prescribed she settled into a wonderful nursing home, near where she had lived with Michael and where she was born. After Mum died, once I got home, the experience flooded out of me as a poem. It almost wrote itself. I read the poem at her funeral.
I guess she was holding my hand one last time. I shared the poem afterwards on Facebook, and many of my friends who had lost someone to dementia commented how much it struck a chord with them, with many sharing it themselves. As I read it now it gives me strength, and I wonder if perhaps it could give strength to others.
When I was knee high, I was immortal Because my Mum always held my hand I knew no harm would come to me In this, the safest place in the land.
As I started to grow older I would walk of my own accord And those hands once there for safety Changed roles to encourage and applaud. Later when I took a hand in marriage With new little hands to hold in mine She was always there when needed To take their hands and give us time. For many years they still held strong Wrapping presents as each birthday came along Giving out big hugs at Christmas In the growing family throng.
But then they started to become unsure Not remembering what to do So I knew that it was my time To hold her hand and help her through. We walked so many miles In corridors hand in hand I just hope that in her own mind We were walking in the sand. Personal storiesVascular dementiapoem. Brought back a lot of memories of my nan and uncle Alec, fortunate enough to still have my parents.
Lovely words.Prev Poem. Next Poem. Would love to read some of your experiences. I am currently caring for and have two care givers looking after my 80 year old mother. She's trapped inside the prison walls That used to be her mind. The woman that she used to be, Has long been left behind. There are times she's quite alert, Her memory's still intact. Then there are days when she disappears, And we know it's not an act. No longer able to care for herself, We couldn't leave her alone.
Her safety had to be assured, So we placed her in a home. Good days are when we visit her, And she calls us by our name. She's grateful for the company, And thankful that we came. Most of the time it's difficult, To see our Mom that way. All we can do is love her now, As we take life day by day.
Changing Places By Alora M. Mother By Tyrene Gibert. Hi all, I am a fellow caregiver and just came across this site I have been a young ish!
The blog is an honest account of my experience of caring over the last few years in poems - some silly, some exasperated, some happy, some sad - of my last three years caring for my mother-in-law, who suffers from Alzheimer's disease, and is aimed at helping to support other caregivers in a similar position.
If you would be happy to link to me, I would gladly return the favour! It is the most hardest, saddest thing to see your Mother slowly fading. In the beginning we all thought it was just old age.
Than my step father passed and than my Mother started to progress quickly.